This is an odd one for me. Patient has chronic history of EDS, POTS, MCAS, IBD, IC, ME/CFS.
She had an MRI of her brain, post MRI she developed tinnitus and can’t leave house because of the pain (hyperacusis/dysacusis). She has to wear ear protection constantly now. She tried glutathione, it helped, tried benzos (didn’t work), tried TENS on back of neck which produced neuropathy in arms ands legs). Tried PEMF, didn’t work.
She has researched small humanin peptide like 3, Humanin G along with Neurotrophin-3 for cochlear synaptopathy. I have never seen these available and curious if anyone has any insight to this condition or possible treatment options. Any input is appreciated.