Hello Khanh
Unfortunately many of my medically complex patients end up exhibiting MCAS when they are dysregulated. For example, a patient with persistent TBD, who is exposed to mold, and then served with divorce papers quite possibly/likely will exhibit MCAS (or POTS, etc).
With MCAS, I don’t think that I have ever seen it as a primary diagnosis. I think of it more like someone’s hyper-reactivity “bucket” got full, and now they are reacting (and de-granulating) to everything. At this point, they have reactions to drinking their morning coffee, IV saline, temp changes and even being touched.
I address these patient’s symptoms coming from 3 directions at the same time:
A) I help keep them safe and calm their system with a Rx cocktail of singulair, xyzal, Pepcid, (used to also add Zantac), and gastrochrom (if foods are one of the triggers). There are also good supplements that can be added like NeuroProtek, Rx.
(side note, at the last Mastermind, Dr S talked about possibly adding histadine to help clear histamine. I have not yet had a chance to work with this, but I am looking forward to doing so. Gotta love his big-brain!!!)
B)I do things to generally stabilize their systems like LDN, LDA (low dose antigen therapy), TA1, BPC, (and I know I am forgetting important things here at the moment).
C)I also try to remove the triggers so that their system will stop over-reacting in the future (handle the underlying infection, remove gluten and any foods that don’t serve them well, of course heal the GI tract, handle mold exposures, remove toxic relationships, and stop the cat from sleeping on their pillow with them, etc).
These are my initial treatment plans, and honestly…. with continued work they all stabilize (however, this can sometimes take persistence and time. So I absolutely should have added “patience” to the treatment plan above!)
warmly,
Cynthia
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